Improve the quality of life and outcomes for neonates with cardiac disease through a multi-specialty and parental collaboration.

It has become increasingly clear that there is no standardization of care of the neonate with congenital heart disease. Many centers in the US are using a multidisciplinary approach to the care of these neonate, however there is a lack of equipoise in incorporation of cross-discipline proactive and preventative measures that could impact outcomes. With the idea that cardiac care is a continuum of care, we have engaged several societies who represent the integral medical care givers who will treat these cardiac patients from fetal life until they are discharged to their families and their medical home. We have engaged pediatric cardiology, neonatology, CICU, anesthesiology, surgeons, perinatologists, and nursing groups. As we continue to evaluate the state of neonatal cardiac care, there remains gaps and inconsistencies as we care for this fragile population.

We have since assembled a world-renowned collection of writers and contributors who are experts in the field of neonatal cardiac medicine. A total of 117 physicians, advanced practitioner nurses, dietitians, pharmacists, and parents have come together with the intent to produce the first comprehensive, multidisciplinary reference regarding the care of neonates with heart disease. As well as having support from many children’s hospitals, we have engaged and received buy-in from nearly every society whose members are involved in the care of this fragile patient population. Not many academic projects have had that level of support.

NeoC3 is a multi manuscript which addresses different aspects of neonatal cardiac care. Our themes will range from fetal care, delivery timing, through inpatient care and end with transitioning into outpatient care. It will be a foundation paper for care providers to have a seamless congruent treatment path to help navigate the care of the complex cardiac patients.

Once we establish and publish the guidelines and standard of care recommendations as above, we will perform a prospective quality improvement project with predictive analysis. The result will be a maneuverable and dynamic set of guidelines with the idea of having the ability to change aspects of it to continue to improve care.

Neonatal Cardiac Care Collaborative Oversight Committee

Juan Villafane, MD (AAP – SOCCS) – Cincinnati Children’s
Shazia Bhombal, MD (NHS) – Lucile Packard Children’s Hospital, Stanford University
John M. Costello, MD, MPH (PCICS) – Medical University of South Carolina
Victor Y. Levy, MD, MSPH (NHS) – Lucile Packard Children’s Hospital, Stanford University
Andy Hopper, MD (AAP – SONPM) – Loma Linda University Children’s
Jonathan Johnson, MD (AAP – SOCCS) – Mayo Clinic Childrens Hospital
Mary McBride, MD, MEd (PCICS) – Lurie Children’s Hospital
Mayte Figueroa, MD (PAC3/ACC) – Washington University School of Medicine, Children’s Hospital
Ravi Thiagarajan, MD (AHA) – Boston Children’s Hospital

Stanford
Children’s National
Mayo
Cook Children’s
Dallas Children’s
University of Alabama
University of Iowa
Columbia University
Milwaukee Children’s
Children’s Mercy
Connecticut Children’s
Medical University of South Carolina
Duke
Children’s Hospital of Los Angeles
University of Virginia
UC San Diego
Cambridge University
Boston University
Children’s Hospital of Philadelphia
Children’s Hospital of Orange County
Cincinnati
Washington University
St Louis
Seattle
Oregon
Lurie Children’s
Toronto Sick Children’s
Texas Children’s
University of Oklahoma
Johns Hopkins
Loma Linda
University of California, Los Angeles
Nationwide

AHA (American Heart Association)
AAP (American Academy of Pediatrics)
ACC (American College of Cardiology)
PCICS (Pediatric Cardiac Intensive Care Society)
NHS (Neonatal Heart Society)
PAC3 (Pediatric Acute Cardiac Care Collaborative)
CHSS (Congenital Heart Surgical Society)
CCAS (Congenital Cardiac Anesthesia Society)
FHS (Fetal Heart Society)
NANN (National Association of Neonatal Nursing)
PCHA (Pediatric Congenital Heart Association)